We need to share with you the reality that things are not so good here. After some time in which it seemed every day Ellen was getting better, we have been on a downward trend now for a couple of weeks.
Ellen now feels bad much of the time.
She now has considerable difficulty drinking enough water to stay hydrated, or eating enough to stay nourished and maintain her energy level. She has had to go to the Cancer Center to receive intravenous fluids. She is again losing weight, and suffering from nausea. She is very tired much of the time. Her discomfort kept her awake most of last night.
She is doing her best to walk, but lately it is not long walks in the hills with a lot of up and down. It is more walking on the flat down to the mailbox and back. But she does it, with determination.
We honestly do not know what is happening. We have had multiple doctor visits, but these have not identified clearly what is causing this problem. Nor have they identified any kind of solution. There have been multiple changes of medications, stopping some, starting others, changing doses, prescription medications, over the counter medications. Luke went to the pharmacy five times in 48 hours early this week. The people there have been very nice to us.
We (particularly Ellen) remain quite isolated here because of the global pandemic. Marketa is so kind to us, and does most of our shopping.
We have another meeting tomorrow morning with Ellen’s oncologist here. And another long distance conference with her doctor at MD Anderson in Houston on Tuesday.
But to this stage, nothing is giving Ellen much relief.
She is handling all of this with grace and dignity, and compassion for others. And love.
She is not really able to do phone calls except when necessary. And is doing relatively little email.
She does very much enjoy receiving post cards or little notes. And we both continue in our hope that there are better days ahead.